On the 1st Day of Christmas my Crohn's Disease gave to me:
A review of my Social Security Disability - I might lose my benefits! The same benefits it took me three years to fight for and cost my family nearly everything to get. Happy Holidays!
On the 2nd Day of Christmas my Crohn's Disease gave to me:
An ER visit due to stomach pain which resulted in the doctor telling me to get a job and if I can't because of my chronic diarrhea I should "get a wheelchair with a bucket on it". Yep, that actually happened! I've never felt more humiliated. 'Tis the season!
On the 3rd Day of Christmas my Crohn's Disease gave to me:
A small bowel follow through which took 4 1/2 hours and the barium still didn't reach my colon! This test normally takes less than half an hour for me to complete. I was in misery. The pain was awful. Let it Snow, Let it Snow!
On the 4th Day of Christmas my Crohn's Disease gave to me:
Festive news from the GI! I have severe narrowing in my small intestine (hence the problems with the small bowel follow through) and must schedule a colonoscopy for further evaluation. A simple balloon procedure may not work and I might need actual surgery. Fa La La La La!
On the 5th Day of Christmas my Crohn's Disease gave to me:
The remembrance that just 4 months ago I had a colonoscopy and the GI informed me that I did have some narrowing at my anastamosis and he could fix it with a balloon procedure later if it caused me problems. Um, seriously, why didn't you just fix it while you were in there. Here we are 4 months later and I've had nothing but problems. What are you doing?!? Jingle Bells!
On the 6th Day of Christmas my Crohn's Disease gave to me:
The opportunity to sit down and have a conversation with my daughter about how I can't make holiday treats and do anything fun with her while she's on winter break because I will be prepping for a colonoscopy and might be having surgery for Christmas! Ho Ho Ho!
On the 7th Day of Christmas I said screw it! I hate Christmas anyway, but my family likes it and once again my being sick has ruined something important. This post was originally going to be a funny sharing of information about what's been happening in a light hearted way, but just typing all this out has really made me see what I've gone though the past few weeks and I'm really angry and upset and scared.
This stricture could have been addressed back in August but wasn't for whatever reason. I'm unable to eat hardly anything because of the pain it causes. My GI is not in a hurry to do anything about his situation. I guess he doesn't have to worry about his insurance deductible starting over at the beginning of the year. Nor does he have to worry about trying to get through the holidays being in pain an not being able to enjoy himself. I'm so aggravated. But while he is enjoying his family and holiday goodies I will be drinking my cocktail of Miralax and Gatorade and pooping my brains out praying it's not too much pressure on this stricture and my bowels don't explode and kill me. Here's to no surgery, **clinks glass** bottoms up!
Happy Christmas to all and to all a good night!
A review of my Social Security Disability - I might lose my benefits! The same benefits it took me three years to fight for and cost my family nearly everything to get. Happy Holidays!
On the 2nd Day of Christmas my Crohn's Disease gave to me:
An ER visit due to stomach pain which resulted in the doctor telling me to get a job and if I can't because of my chronic diarrhea I should "get a wheelchair with a bucket on it". Yep, that actually happened! I've never felt more humiliated. 'Tis the season!
On the 3rd Day of Christmas my Crohn's Disease gave to me:
A small bowel follow through which took 4 1/2 hours and the barium still didn't reach my colon! This test normally takes less than half an hour for me to complete. I was in misery. The pain was awful. Let it Snow, Let it Snow!
On the 4th Day of Christmas my Crohn's Disease gave to me:
Festive news from the GI! I have severe narrowing in my small intestine (hence the problems with the small bowel follow through) and must schedule a colonoscopy for further evaluation. A simple balloon procedure may not work and I might need actual surgery. Fa La La La La!
On the 5th Day of Christmas my Crohn's Disease gave to me:
The remembrance that just 4 months ago I had a colonoscopy and the GI informed me that I did have some narrowing at my anastamosis and he could fix it with a balloon procedure later if it caused me problems. Um, seriously, why didn't you just fix it while you were in there. Here we are 4 months later and I've had nothing but problems. What are you doing?!? Jingle Bells!
On the 6th Day of Christmas my Crohn's Disease gave to me:
The opportunity to sit down and have a conversation with my daughter about how I can't make holiday treats and do anything fun with her while she's on winter break because I will be prepping for a colonoscopy and might be having surgery for Christmas! Ho Ho Ho!
On the 7th Day of Christmas I said screw it! I hate Christmas anyway, but my family likes it and once again my being sick has ruined something important. This post was originally going to be a funny sharing of information about what's been happening in a light hearted way, but just typing all this out has really made me see what I've gone though the past few weeks and I'm really angry and upset and scared.
This stricture could have been addressed back in August but wasn't for whatever reason. I'm unable to eat hardly anything because of the pain it causes. My GI is not in a hurry to do anything about his situation. I guess he doesn't have to worry about his insurance deductible starting over at the beginning of the year. Nor does he have to worry about trying to get through the holidays being in pain an not being able to enjoy himself. I'm so aggravated. But while he is enjoying his family and holiday goodies I will be drinking my cocktail of Miralax and Gatorade and pooping my brains out praying it's not too much pressure on this stricture and my bowels don't explode and kill me. Here's to no surgery, **clinks glass** bottoms up!
Happy Christmas to all and to all a good night!
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